Wednesday, December 8, 2010

Updates

Well, alot has happened since my last post.  The clinical manager (the main person I've been dealing with) calls and asks if I ever went to get my fasting homocysteine drawn.  I told her yes & gave her the number to the lab.  She then goes on to tell me that I was positive for homozygeous something.  I was driving and all I understood was a bunch of letter.  She said if my homocysteine level was normal then I won't have to worry about the clotting issue.  If it comes back abnormal, I will need to be put on Lovenox injections.  Well, I never heard back from her for a few days so I called the Wed before Thanksgiving thinking I could get some answers.  Of course she wasn't in the office that day so I left a message for another nurse.  She calls back & tells me the homocysteine is normal so no need to worry about the Lovenox...YAY!!!!!  I also asked if my autoimmune results were in yet.  She wouldn't give me any results & said that the manager will call me on Monday.

So Monday rolls around & she calls me.  She says that hubby & I have a 50% alloimmune match.  In a nutshell I would need to do Intralipid therapy in order to get & stay pregnant.  Apparently we have similar genetic makeup and if the embryo carries it the NK cells in my uterus will kill it off.  Like we don't have enough issues on our own, now we add this to the mix.  After that I told her we still want to go on owith IVF so she transferred me to the office manager so I can get on the Jan cycle.  I talked to her & told her which plan we wanted to do & she gave me 2 places for financing (did I mention my insurance sucks & doesn't cover this?!?).  She said she would fill out the worksheet & send it off for approval.  In the meantime I emailed the contact for financing, which they are out of Nevada.  The guy responds and says the rules have changed & they only finance for the state of Nevada.....great.

The next day I got a call from MY coordinator.  She said she is going to go over the labs with Dr H & will be sending out a calendar soon.  FINALLY!!!!  The next day I got it!  Lupron will start on 1/5 & stims will start on 1/18.  She then emailed & said since I'm out of town she is mailing me the calendar along with the consents I will need to get notarized & signed.  She told me to call when i get the packet & we will go from there. 

A few days later I decide to email her to ask if she can order my meds thru my hospital pharmacy since my insurance is changing and my copay is cheaper thru there.  Also, I asked if she can hold off on the Follistim & Menopur until Jan since they aren't covered right now.  A few emails back & forth (which she was VERY nice & helpful) she said she will order all the meds on Jan 3rd since the 1st is a holiday & Saturday but I need to make sure I get them by the 4th.  I will have to call the pharmacy the week before to make sure they have at least the Lupron in stock so I start that on the 5th.

I got the packet in the mail on Monday & left the coordinator a message.  I never heard back yet so I sent her an email to call me whenever she has time to go over all the consents.  I know the Dec cycle is going on now so I didn't want to be pushy.  So that's my update!